--I have spoken at a local writing group about blogging.
--I have met with a local manufacturer about helping me produce the bags, and we are still working out the kinks on this venture.
--I have met with a business coordinator about beginning a non-profit, which seems a bit cost prohibitive right now, as Lila needs the $2500 for her therapies. I am hoping that someone reaches out and offers their help :-) (I realized that this came off wrong, I meant that I hope someone might offer their services to help accomplish all of the parts and pieces of the non-profit without the large fees)
--I have been writing, re-writing, practicing, memorizing, and re-writing again a Tedx speech, which I presented last Friday. Very scary moment for me, a ton of hours went into it, and I actually believe that I didn't blow it...hahahahah!
--We have been working with a Realtor to put our house up for short sale mid-May.
--I have set up purse displays in two retail locations, and have 8 more that have offered to display and sell the bags for me.
--I have had three vendor shows to sell purses/bags for Lila and have raised another $683 for her therapies!
Yes, I know what you are thinking...that's not a lot to accomplish in 4-6 weeks (hahahah)! I have been forgetting ridiculous things, and not getting back to people in a timely fashion. I apologize to you all, and know it will get better from here on out :-)
As for Lila, I last left off with her doctors appointments surrounding her involuntary movements. Her neurologists assistant here locally thought it looked like tourettes, our CP specialist at Shriners in Sacramento thought this was not at all the case. So, we are looking to go to UCSF this summer to be seen at their movement disorder clinic and get a third opinion. The doctor at Shriners thought it just looked like typical CP movements stemming from the cerebellum, feeding to the basal ganglia. He felt that since everything else in her life was progressing, that this was just something we needed to watch. Thought that maybe an MRI would be good to do again, to be able to compare to when she was 2 1//2...is the cerebellum growing, changing, atrophy-ing? So, we intend to go to UCSF first, before we have to put her through this scan, making sure that we get all views that each of the doctors would like to see.
In the world of progress...Lila is doing great! She walks with her canes everywhere, unless it is a long distance...then she uses her walker. Here is a video of the girls at Elmo Live, and Lila is playing hopscotch with her walker...
|Here we are on Sesame Street! The girls had a BLAST!|
I volunteer in Lila's class on Mondays, and today they did a writing assignment. One of Lila's classmates was in remission from Leukemia, and was just care-flighted to Oakland Children's Hospital this past weekend with pneumonia. He is not well, so the teacher had the kids write a story about what they did this weekend and say something to cheer Cooper up. Here is what Lila wrote, and I was so proud of her! I only had to help her with three or four letters, and it is legible (at least compared to all writing assignments in the past :-).
|It says...'Dear Cooper, I went on stage. I miss you. Love, Lila"|
Have a great week, and I will post again soon!!!!!