Thursday, December 13, 2012

Purses, vendor shows

So sorry it has been a while since I've written.  Since my last post, I have had four vendor shows and have a ton of custom purse orders to complete for the Holidays!  AAhhhhh, in over my head right now, but will all slow down in a couple of weeks...whew.   Over the past month we have raised $1683 for Lila, and now have the purses hanging in a local Salon, CRIMSON HAIR AND ART STUDIO (855 South Center, ste 102).  Jessy, a dear friend and owner of Crimson, has allowed me to hang the purses there for the Holidays in order to raise more money for Lila.  Thank you Jessy!  I know they have sold a handful of purses, but not sure how much they have helped us to raise to date.

Thank goodness for all of the funds we have raised for Lila this year.  Our intention was to use this $10,000 (or so) that we have raised in 2012 for her physical therapy session next summer in LA, however we are becoming much more serious about having another stem cell treatment in 2013.  Just over the past 4 weeks we have seen many changes in Lila that are beginning to remind us of our "pre-stem cell" treatment time in 2011.  Lack of focus, pure exhaustion, lack of balance, lack of motivation, inability to express herself verbally leading to very long and exhausting fits (exhausting for all of us), to name a few.  We knew that there would be a plateau that would happen following the treatment, but didn't know when or what we would see...well, here we are.  Every therapist, teacher and aid has mentioned this to us, and we are clearly seeing the same issues at home as well.

So, the next three weeks bring us our Christmas break from school.  We have hopes of a lot of rest, fun activities, and very little school work, so that she can go back to school in January and hopefully have a fresh start.  I am tired also, so am REALLY looking forward to the break!

More posts to come, as I have a lot to share...this is what happens when I take too long of a break from writing :-)

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