Friday, March 4, 2016

Dodgeball 2016!!!!

2016 Dodgeball...the best event yet!!!
Congrats to Men in Tutu's!!  First place!

This was our 5th year raising funds for Lila's treatments and therapies, and the support and love felt
this year was above and beyond!  It is amazing what can happen when you give back, as our funds raised have doubled two years in a row.  This years final total is $15,766, of which will be divided evenly between Lila, Lennah and Scarlett.

Some of you came out with outstanding costumes!  Some of you came out with your beer drinking arms in order!  Some of you came out with strong, supportive hugs!  Some of you came out with awesome posters and masks...typical athletic supporters!  Some of you came out to lend a hand for the day!  Some of you offered your business services!  Some of you came for lunch and some good laughs!

Any which way you look at it, the event would not have been a success without each and every one of you.  From the bottom of our hearts, I scream from the mountain tops....

This journey with Lila has completely changed our perspective on life.  I know this sounds cliche, but the small stuff really truly does not matter.  Lila has taught us to appreciate each and every little milestone, enjoy spending time together as a family, not to worry about the amount of money we have (or don't have), to look at experiences/therapies/medical treatments as opportunities for growth, and smile at the small stuff.  She gets up and faces everyday with a smile, as her joints hurt, neck and shoulders hurt, she can't get her words out fast enough and exhibits such patience.  Lila walks with her quad canes and falls often...she just gets right back up and keeps moving along.  Lila has the best peers ever...they wait for her to get a full sentence out, encourage her to answer questions, and teach her that she is capable of doing exactly what they can do.  In her eyes, her life is great and she is no different than anyone else.  Her life is full of laughter, singing, performing, dancing, reading, swinging, biking, and playing with her friends, just like any other kid.

I would like to encourage you all to spend as much time with your kids as possible, appreciate your friendships, value everyone for who they are and not for what you think they should be, and when you fall...get back up and keep on going!


  1. You guys are so awesome and inspiring, especially for parents! I love reading your posts. I nominate you for a Liebster Award :)

    1. Melanie, you are so kind :-) I know you have your struggles as well, so I thank you for reaching out.
      We are still in FL for therapy, so I will look at that Liebster award when I return home :-) Hugs