Keep 'em coming :-)
|Lila riding her bike the other day...it was 65 degrees!!|
Two of the Mom's have taken their children to Duke to be part of the study happening here in the States. There are a few restrictions to this study, one being that the family needs to have saved the child's own cord blood. We did not save Lila's cord blood, so we do not have the option of being part of this study. Duke is a year and a half to two years into the study, I believe, and will not be done with the data for another two years. At this time they will consider a sibling to sibling cord blood study, but it will take at least another year or two past the end of the original study to get it all in order. This is information I have gotten from the main doctor running the program at Duke. Atlanta is also putting together a study of a child's own cord blood, using placebo's in some children and not others. This again is not something we are not eligible for.
|Lila doing gymnastics on her parallel bars :-)|
I will continue to write about these amazing families while the blog progresses, as they all have wonderful stories to share!!! The Mom's that we have spoken with are amazing women whom are the biggest advocates for their little ones. This has been an unbelievable inspiration to us, and has helped us to gain strength in our decision making and caring for Lila. THANK YOU Carlene, Carrie, Cindy, Jennifer, and Lisa!!!