Lila is a champ! Her energy level is definitely better than before her stem cell treatment. Today she went to daycare this morning, I picked her up at 12:15, and she decided she wanted to go to her regular school also (her kindergarten class). So, she was busy from 8:30 a.m. until 3:00p.m., and then napped until 5:15 p.m. Great day for her! It is amazing to me that she could make it through all of those activities with full attention!
At daycare, not this morning, but on Friday morning, the owner of the school (Denise) passed her room and saw her through the window (we LOVE Denise). Denise was so happy to see her that she went directly into the classroom, got down to Lila's level, and said, "Lila, I am so happy to see you here this morning". Lila very quickly and gently grabbed Denise's face and replied, "I'm glad to see you too". This is a breakthrough for Lila! Normally she would not process fast enough to get all of those words out, and just smile at you, or maybe say Hi. How fun for everyone!
Also, at school today (in the afternoon) she worked with Cayla, her speech therapist. We love Cayla! Lila has been working with her for 2 years now and gets excited to see her every week. So, I asked Cayla how Lila did, and she said she can't believe the difference already. She was answering questions without hesitation, had a high energy level, and was attentive to all that Cayla asked of her. YAY for Lila! We are so excited for her to be able to communicate better with her teachers, therapists, friends, and family :-)
Lastly, when Lila came out of her treatment we noticed a couple of spots on the back of her neck and ear lobe, like little freckles. They were just specs at the time, but are getting larger by the day. Hopefully the doctors will have some answers for us on this...just waiting.